A Wish for Grace, A Dream of Sleep

Fa-la-la-la . . . oh, forget it.

Fa-la-la-la . . . oh, forget it.

Today is the day before Christmas.  The last shopping day.  The last day to go out and buy food if we’re to have a proper meal for Christmas.  I have three baskets of laundry piled high:  His dirty clothes; my dirty clothes; clean clothes and towels waiting to be folded.  We’ve a tree (see photo above) with lights and an angel on top, but nothing else, and yet, I think it’s the most beautiful tree we’ve ever owned.  It is perfect, is it not?

I am tired.   Really, really tired.

This has been my refrain, my mantra — every single day this year.

After months of trying to find the cause, I learned that I have severe sleep apnea.  A machine recorded how many times I stopped breathing in my sleep, which turned out to be an average of once every 75 seconds.  I was hoping Santa would bring me a CPAP machine for Christmas, but it looks like that’s not going to happen.  (A higher power than Santa requires that he fill out forms and documentation in triplicate while also procuring the eyeball of a Komodo dragon, three sets of fruit bat wings, and a pair of fuzzy dice before he’s allowed to deliver medical equipment.)

All of that aside, this is not a post just about me.  It’s about you, too, my readers, my friends, my family, my tribe.  What I wish for us all.

I’ve had plenty of down time this year.  Hours spent lying in bed–not sleeping–waiting for the brain fog to lift, the morning headache to subside.  Time enough to think about all the important stuff, or my interpretation of it, anyway.  (Everything is subjective.)

And what I’ve come up with is this:  Life sucks.

Life is incredibly difficult and unfair.  It’s full of nasty isms — racism, sexism, ageism, terrorism.  Everybody hates something, or someone.   People are mean, politicians corrupt.  All over the world people are suffering and sick, afraid and lonely.   People are dying.  Too many are contemplating suicide.

Why should I stick around for this?  Why should any of us?

It’s been that kind of year.

And then someone on a social media site shares a cute cat video or (even better) the video with a penguin laughing — laughing — and for a few seconds I forget about how hard life is.  It occurs to me that life has always sucked, yet here we are, still hanging in there, wending our way towards grace and a little kindness through whatever means we can.

Tomorrow is Christmas, the Boy is home, and music and laughter will abound despite everything else.  Despite piles of laundry, an unadorned tree, and gifts that didn’t get wrapped (sorry, guys!).  Despite death and disease, hatred and terrorism, love, hope and charity still persist.

Wherever you are, however you hurt, hold on to the fact that there are people who love you.  There is generosity and love all around.  Sometimes it’s hard to see, but it’s there, I promise you.   You are enough.  You have done all you can.

Tomorrow is another day, another step forward on whatever path we choose. An added bonus here in the Northern Hemisphere is that we will have another minute or so of light.

That’s good enough for me.

May the coming year be better for us all.  May we all find joy in whatever nook or cranny it resides.  But most of all, I wish us peace.

 

 

 

 

For in that sleep: what depression feels like

what dreams

 

Sixteen years ago my brother sat in a cozy chair in front of a picture window that allowed him a view of the Strait of Juan de Fuca and ended his life.  He used a gun. The bullet tore through his brain and his family’s hearts.  We stopped breathing for years.  We told ourselves that he chose this because he was in constant pain. His spine was beginning to stiffen; he could not raise his head.  He went sock-less, because it was too difficult to pull them on.

It wasn’t just physical pain.  My brother suffered from depression long before the arthritis that immobilized his spine set in.  Like the color of our eyes or the set of our jaws, depression, anxiety, and addiction are characteristics that run in my family on both sides.

And, for the most part, we don’t talk about it.

I was a teenager the first time I thought about dying.  I took a fist full of aspirin, hoping it would — while also hoping it wouldn’t — be enough to send me to sleep for good.  My ears rang for days and my stomach burned.  Sometimes I felt so inexplicably sad and so utterly weary that I would simply start to cry.  If someone asked me why, I couldn’t give them a reason.  I didn’t sleep well.  Especially on nights when my father was particularly restless and drinking a lot.  I knew there were times when he thought of dying as an escape.  In the dark I stayed awake to listen, fearful that if he went, he’d try take the rest of us with him.

After high school I moved half-way across the country.  I made friends.  I drank too much, I still cried, but only when I was alone.  I laughed like hell with my friends; I was charming and fun.  My eyes darted around the room as I wondered whether anyone would guess how miserable I really was.  I felt like my feet were encased in cement — if I fell in a river, I’d drown.

I wanted just to be happy, to be normal.  I wanted to know what was wrong with me.  I kept those wants to myself.  I thought that in thinking about my unhappiness, I was wallowing in self-pity.  People wouldn’t want to be around me, if they knew.

Eventually, stress and the struggle drove me to the third story edge of an open floor on the house my husband and I were building.  I was alone there that afternoon.  I knew that if I let myself go, my family would assume I’d fallen accidentally.  I was afraid of heights.  There would be no shame.

I chose therapy instead.

Today, I am an ongoing work-in-progress.  I don’t know that depression ever completely goes away.  Even after years of therapy, and many more years of taking antidepressants, I sometimes still get blindsided by a cavity of despair so dark and deep, it seems never-ending.  Other times depression hits me with a flip-flop of emotions, wildly fluctuating from bleak despair to . . . Okay, I’m coping . . . wait . . . nope . . . going dark again.  Often, in the space of 30 minutes or so.  I have to talk to myself a lot.

Sometimes, I just want to hide.  I want to go into my room and not answer the phone or answer emails.  Mostly, I don’t want to tell anyone when I’m depressed. Generally, they don’t understand.  People seem to want an explanation as to why.

I’ve learned when I need to ride out the storm.  I know that when I’m tired and overwhelmed by things my husband and others take in stride; when I get so busy I don’t eat well (or enough), or when the damn world is just too much with me, I have to retreat for a bit and simply be quiet.

A great deal of the time I am happy with where I’m at, content with how I got here.  I laugh a lot and mean it now.  Managing depression is work, but so is living, even in the best of times.  We all struggle with something.

Several months after my brother’s suicide, my family got together, still raw and hurting from our loss.  We went to see What Dreams May Come.  I think we must have thought it would be cathartic.  It wasn’t.  The vision of Hell reserved for the woman who took her life horrified me.

Robin Williams’ suicide makes me crushingly sad.  It’s the kind of heavy sorrow that weighs me down.  He was the brother/son/father/friend we all wished we knew.  A rapid-fire wit with a thousand different characters, the genius of which we are unlikely to see again.  We all knew about his problems with alcohol and cocaine.  Addiction is flashy and loud and calls attention to itself.  Depression is a quiet little liar and a sneak.  It whispers in your ear and tells you lies that no one hears but you.  Robin joked openly about his battle with addiction.  He said little publicly about depression.

I hope that we start talking more openly about depression.  About how quiet, but debilitating it can be.  It won’t be easy.  I have a difficult time talking to anyone other than my husband and a few friends about it.  When I do, I feel awkward and whiny and I end up changing the subject.

For my brother, for a sweet prince of laughter, and for all the other voices stilled, please keep talking about depression.  Keep listening.  Listening without judgement, without asking why.  Be kind.  And if you or someone you know feels worthless and depressed, you can find someone to talk to here.

 

 

Cleaning house

As I am wont to do periodically, I have gone quiet.  The truth is, that sometimes the world is too much with me.  This is a time when I hunker down, take stock, recharge, rethink, re-plan.  It used to worry me, these periods of introspection. Now we know so much more about things like depression and how introverts function, and I have learned to ride it out.

One of the things I’ve been thinking about, is that it’s time to clean out my house. And not just metaphorically.  After twenty-six years living with the same man in the same house, we have accumulated a lot of stuff.  After a while the stuff gets in my way.

I’m focusing first on my studio.  The room that houses most of my books and all my art supplies.  (I’d include a photo, except that it would embarrass me to no end to have you see how neglectful I’ve been — my family knows what I’m talking about, ask them.)  It’s also the room where I exercise, write and do all my creative work, the room where my muse resides. She is not happy with the mess.

I’m on a mission here:  Pay heed to my muse and get rid of a lot of stuff.  So, if you haven’t heard from me in awhile, this is where I’m at.

I’ll be back momentarily.  I promise.  In the meantime, I’ll leave you with this little tidbit.  Something I found in one of the many notebooks I have scattered around the room like old shoes.  I rarely date things, so I have no idea when I wrote this, nor do I remember what its purpose was, other than that I do have reoccurring dreams of flying.

Enjoy.

In dreams, I fly, though there are no wings budding from my back like tender shoots that blossom on spring trees.  No feathers fanning in orgasmic waves behind me. There are just my arms — flesh and blood and bone — to lift me, weightless as a dime while I circle above my oldest fears, childhood tormentors grown fat, and unrecognizable, wearing clown pants and floppy shoes.

Being quiet pm

And this . . . painted while I was in college and my house had hardly any stuff at all.

Not waving, but drowning . . . .

Not Waving but Drowning

Nobody heard him, the dead man,
But still he lay moaning:
I was much further out than you thought
And not waving but drowning.

Poor chap, he always loved larking
And now he’s dead
It must have been too cold for him his heart gave way,
They said.

Oh, no no no, it was too cold always
(Still the dead one lay moaning)
I was much too far out all my life
And not waving but drowning.

Stevie Smith

I had planned on posting a piece about the end of my summer.  But, then I was reminded that today is World Suicide Prevention Day.   And I thought about how on May 6th, fourteen years ago, my brother, the baby of the family, sat in the same lounge chair that he often slept in, and ended his life.

Depression is an insidious disease.  Statistically, more people in the world die from suicide than from war and murder combined.  I can understand why:  Life is full of misery and hardship.   There are moments in almost every day that I think this.  But there are also moments in every day when I find something to feel good about or laugh at, and that is enough for me.  That, and having a wonderfully funny son, a loving husband, family, and friends.

My brother and I talked about a lot of things, but we danced around the possibility of suicide.  I worried that if I said the word aloud it would make the possibility more real.

So, let’s talk about it, people.  You can find help and resources here.  Or call 800-273-TALK (8255) now.

Let’s not be afraid to say it:  Don’t die.

Please.

My brother, Tom. Taken on my last visit with him, a few weeks before he died.